Words of Hope


"You Must Go On...And Be My Tongue...Tell My Story...So That I May Live On." - Source unknown
Little Mallory
Mallory Monical
June 20, 2003 - October 3, 2005
A letter from Mallory's Mom - Becky
Hi, I just want you all to know that Mac made a friend in Heaven, her name is Mallory Jo Monical.  She joined him in heaven at the age of 2 years and 3 months.
Mallory had  it rough at the beginning of her life.  She was born with down syndrome. That seemed huge at first, but wasn't such a big issue after finding out she had a congenital heart defect known as AV Canal and Tetralogy of Fallot, this means 4 different defects of your heart.  
Mallory had open heart surgery at 3 months old.  That surgery didn't seem to help her so they decided to have another heart surgery at 5 months to repair some leaks in the valves of her heart.  She did pretty good after that, but they needed to put a trache in because her airway didn't form right.  She had what you call complete tracheal rings, which means a very small airway for her to breathe through.
On February 1, 2004 Mallory had a stroke and we were told she would never eat, drink, walk, or talk.  That was the saddest day of my life I thought then. February 10, 2004 Mallory had a feeding tube put in her stomach, because she couldn't get enough nutrition by taking a bottle. 
March 3, 2004 she came home with 16 hours of nursing and three kinds of therapy 3 days a week. She was improving slowly, but at least she was a happy child and had a smile all the time.  We were just so blessed that she was still a part of our life.  God answered so many prayers for Mallory.  She was a true fighter.
On January 12, 2005 Mallory had trachea surgery, so that she could get her trache out, and of course it didn't go very well, so we had to stay in Cincinnati Children's Hospital.  Finally, after 2 months she was doing better and kept the trache out. (Hooray) 
Mallory had such a wonderful summer in 2005, then in September 05 she was diagnosed with (AML) Acute Myelogenous Leukemia.  Wow, What a Shocker!!!  We started chemotherapy right away.  Two weeks into treatment Mallory got a staff infection, pneumonia, and had a real severe stroke, which affected her brain stem.  Dr. told us that there would be no way she could ever recover from that, so within a day there was no change in her condition, so we had to make the worst decision we have ever made. 
Like I said Mallory joined Mac in Heaven on October 3, 2005.  I know they are having so much fun, at least Mallory can run, jump, play, eat like she never got to do in her life.  I know she is in a better place, because she suffered so much in her short 2 years of life. 
It is so nice of Mac's family to include us on his website.  They are such wonderful devoted people that care so much for each other.  What a blessing they have been to my family.
Sincerely,
Becky - Mallory's Mom